Horizon Pharma plc Partners with Global Genes® to Unite the Rare Disease Community at the Biotechnology Innovation Organization (BIO) International Convention
Every time somebody texts the word "RARE" to 565-12, Horizon will donate
"Everybody has the opportunity to contribute to Global Genes' mission to eliminate the challenges associated with rare disease," said Nicole Boice, founder and CEO of Global Genes. "From scientists in a lab working to uncover the next targeted compound for a genetic disease, to the pharmaceutical companies pushing forward with clinical research, to the people and their families living with rare diseases who participate in clinical trials, organize fundraisers and further elevate awareness and education about rare diseases. Today, Horizon is making it very easy to lend a hand and raise your voice."
Horizon Pharma makes medicines available for rare diseases that are particularly devastating and isolating, affecting as few as 500 people in the United States and 2,000 worldwide. In the
"At the BIO International Convention, Horizon Pharma joins innovators from throughout the healthcare sector in driving new approaches to healthcare challenges, and rare diseases are particularly daunting - there are more than 7,000 rare diseases and only 5 percent have approved treatment options," said Dave Happel, executive vice president, Orphan Business Unit,
About Global Genes®
Guided by its mission to eliminate the challenges of rare disease, Global Genes® is a leading rare disease patient advocacy organization with worldwide reach that serves and promotes the needs of patients and families touched by rare and genetic diseases. Since 2009, under the unifying symbol of HOPE and the Blue Denim Genes Ribbons®, Global Genes® has been building awareness, developing patient-focused education and advocacy tools, and funding patient care programs and early investigative research. For more information visit www.globalgenes.org. Join the RARE conversation! Follow @GlobalGenes on social media.
- Global Genes. "RARE Diseases: Facts and Statistics." Available at https://globalgenes.org/rare-diseases-facts-statistics/. Accessed
June 19, 2017.
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